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Coping with my condition

Topic and Content
Link
Adjusting to a diagnosis and feeling different

Strategies and resources for both children/young people and parents/carers to support with adjusting to and talking about a physical health condition, feeling worried about a health condition, and feeling different


Odd Dog Out - Book

All about me!

A self-esteem tool to help children and young people think about their identity beyond living with a health condition

 

Giving information about my condition

Structured e-documents for children and young people to complete alongside their parent/carer to aid communicating important information about a physical health condition. These can be shared with anyone within your child or young person’s system (e.g teachers or medical and health professionals)

Pain

Strategies for children and young people to better understand and communicate pain, and for parents/carers to help support their child or young person through pain

Fatigue

Strategies for children and young people to better understand and manage fatigue, and for parents/carers to help support their child or young person through fatigue


Overcoming Chronic Fatigue in Young People is a book which provides an effective evidence-based, step-by-step guide to managing and overcoming chronic fatigue. An accessible and practical manual aimed at young people, with downloadable material (available online) to support recovery.

Understanding and Managing Fatigue has been written specifically for children struggling with fatigue following a head injury however much of the information is useful for all children struggling with fatigue.

Procedural anxiety

Apps and resources to help children and young people prepare for procedures and coming into hospital

Medications

Resources for parents and carers to support with giving medication to your child (if applicable)

Condition-specific resources

A list of national helplines and websites within the UK for a range of physical health conditions

Resource links for specific health conditions